Neurodiversity in healthcare involves recognizing and addressing the unique needs of neurodiverse patients. I know several neurodivergent individuals that have health anxiety that can be severe. Feeling heard, supported and validated can be really helpful to these individuals. This requires healthcare professionals to be informed, empathetic, and adaptable to assist neurodivergent people in becoming more comfortable in a healthcare environment. I for one get scared and anxious when needing any type of healthcare. But when paired with an someone empathetic and understanding makes a scary setting much more tolerable and I get more out of it as I am calmer.
Recognizing and Supporting Neurodiverse patients
- Education and Training:
- Specialized Training: Provide healthcare professionals with training on various neurodivergent conditions, including autism, ADHD, dyslexia, Tourette Syndrome, and many others.
- Continuous Learning: Encourage ongoing education to stay updated on best practices and emerging research related to neurodivergent populations.
- Recognizing Symptoms: Educating providers on the signs and symptoms of various neurodivergent conditions to ensure accurate identification and diagnosis.
- I have been trying to pursue a diagnosis ever since I started putting the puzzle together a couple years ago. It is very difficult to get a diagnosis as around here in central Illinois it was several months wait time ( I think it was 9 months when I contacted one agency) and once you get in it is a few thousand to get diagnosed as most places I contacted didn't work with insurance. One place said they would send a bill I could submit for insurance but when I contacted insurance they didn't seem like that would be the case. It would be nice if general practitioner's could do some of the preliminary testing to see if it is worth it to pursue other testing. At least then neurodiverse people would have some sense of direction. When I talk to people who are most likely neurodivergent they have no idea how to cope and just muddle thru life “dealing with it” the best they can. There has to be better ways.
- Awareness and Understanding:
- Understanding Differences: Recognize that neurodivergent patients may process information, communicate, and behave differently.
- Empathy and Patience: Approach neurodivergent patients with empathy, patience, and an open mind.
- The doctor I was with for 25 years before moving and obtaining my new doctor would sigh at me if I was overly anxious or asked more than a couple of questions. She once even started opening the door as I was still talking and I had only been in the room like 10 minutes. She also was very upset and talked to me with an aggressive tone when I arrived 5 minutes late to my appointment one time. It made me feel like a burden since I obviously upset the flow of her day by a few minutes. If she was familiar with ADHD or neurodiversity she would have been aware that while somewhat rude us neurodiverse people sometimes have time blindness and run late. At the very least she could have been professional and patient.
How To Support Neurodivergent Patients In A Clinical Setting
- Communication Strategies:
- Clear and Simple Language: Use clear, straightforward language and avoid medical jargon. Provide written and visual aids to enhance understanding.
- Alternative Communication Methods: Be open to using communication tools like picture boards, sign language, or digital apps if necessary. My new doctor has a patient portal, and while this isn't a new thing it is new to me as my old doctor didn't have anything like that. It's nice that I can now go into the portal and see what was said/done at the appointment. I can also send messages which is very helpful as I am not on the spot like in appointments and can think through my questions and responses so nothing is missed with how my brain processes things.
- Sensory Accommodations:
- Sensory-Friendly Environments: Modify waiting rooms and consultation areas to minimize sensory overload (e.g., reduce noise, adjust lighting). Also in the age of cellular phones and technology clinics should insist on a quiet waiting area free from excessive noise like people using the speaker on their phones instead of headphones. That is extremely troubling to neurodiverse people to be subjected to things like that when out in public.
- Personalized Care: Allow patients to bring comfort items or support persons to appointments. This is important as appointments are often overwhelming and stressful so to have a comfort person or item with you is beneficial. I most often go alone but it's nice to sometimes have someone go with me in case I miss something during the appointment.
- Patient-Centered Care:
- Individualized Care Plans: Develop care plans tailored to the specific needs and preferences of neurodivergent patients.
- Informed Consent: Ensure that neurodiverse patients understand their treatment options and consent process. Use visual aids or extended time for explanations if needed. I have had health professionals look at me like I am being dramatic when they are doing things they didn't even explain was going to happen! Then they wonder why someone with high anxiety is freaking out. Communication is key and it only takes a few seconds to make sure the person understands what is to happen. It is also helpful for me if they explain why something is needed.
- Accessibility and Inclusivity:
- Flexible Scheduling: Offer flexible appointment times to accommodate neurodivergent patients who may need longer consultations or have difficulty with traditional scheduling. I know this sounds like a long shot as I know clinics are busy places and need to move along rather quickly on a schedule. But if even 15 minutes could be added to the appointment that may be beneficial. Or even offering to do telehealth for something that doesn't need to be done in person would also help.
- Inclusive Practices: Respect the diverse backgrounds and identities of neurodiverse patients, including their cultural and social contexts.
Challenges and Solutions
- Addressing Stigma and Bias:
- Combatting Stigma: Challenge stereotypes and misconceptions about neurodivergent patients within the healthcare system. I can sometimes pick up on when someone seems to have preconceived notions about me. Especially if they have met me before.
- Promoting Inclusivity: Foster an inclusive culture that values neurodiversity and promotes respect for all patients.
- Improving Access to Care:
- Holistic Approach: Integrate mental health services with physical health care to address the comprehensive needs of neurodivergent patients. My new doctor has an interest in mental health which is why I picked her. To say she has been fantastic is an understatement. For once in my life I actually feel supported. Everyone should be able to experience this type of support and empathy as unfortunately when speaking to various individuals most of whom do not have that type of support in their personal lives.
- Community Outreach: Engage with neurodivergent communities to understand their specific needs and improve service delivery. Attending seminars or community events would help expose someone that hasn't had much experience with neurodiversity.
- Support for Caregivers and Families:
- Resource Provision: Provide families and caregivers with resources and support to navigate the healthcare system.
- Collaborative Care: Involve families and caregivers in the care process to ensure holistic support for the neurodivergent patient.
Creating a healthcare system that recognizes and supports neurodiversity enhances the quality of care for neurodivergent patients. By adopting inclusive practices, healthcare providers can ensure that all patients receive respectful, effective, and personalized care.
To all health professionals who already support neurodiversity. Your dedication, support and empathy make a world of difference and transforms lives. By embracing diverse minds, you're not just treating patients; you're validating their unique experiences and strengths. Your work fosters inclusivity and understanding, paving the way for a more compassionate society. Your efforts inspire a better future for everyone. Thank you for your compassion, expertise and commitment to making a difference.
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